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Letter the the Editor

Alzheimer’s Advocacy

Karin Pantel
Posted 6/24/22

Monticello

To the editor:

June is Alzheimer’s & Brain Awareness Month, when we raise awareness of over 6 million Americans who have Alzheimer’s and over 11 million people who …

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Letter the the Editor

Alzheimer’s Advocacy

Posted

Monticello

To the editor:

June is Alzheimer’s & Brain Awareness Month, when we raise awareness of over 6 million Americans who have Alzheimer’s and over 11 million people who provide unpaid care for them. Serving as a New York State Alzheimer’s Congressional Team member, I recently attended the Alzheimer’s Impact Movement Forum in Washington D.C. with hundreds of other advocates from across the country. Our main objective at the Forum was to gain support from our Congressional representatives in implementing Alzheimer’s legislative priorities.

My advocacy group of ten met with a very receptive member of Senator Schumer’s staff at his D.C. office. We focused on two of our identified priorities and we requested that Senator Schumer support us by helping move them forward:

1) The bipartisan Comprehensive Care for Alzheimer’s Act (S.1125 / H.R. 2517) to create a more effective path to dementia care and address shortcomings in the way dementia care is currently delivered.

2) The bipartisan Equity in Neuroscience and Alzheimer’s Clinical Trials (ENACT) Act (S.1548/HR. 3085) to increase the participation of underrepresented populations in Alzheimer’s and other dementia clinical trials.

In addition to racial and ethnic groups, “underrepresented” also includes people who live in rural communities with limited access to clinical trial locations, transportation availability, cost to participate, and internet availability.

Please join me in urging Senator Schumer to move this legislation forward!

To learn more about Alzheimer’s disease or get involved in community activities, volunteerism, or advocacy- visit alz.org and alzimpact.org to get involved with the fight against Alzheimer’s.

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